Inflammatory Breast Cancer Doesn’t Have A Lump!

This month when the e-mail came into my inbox for “July’s Perfect Post Awards” (thanks to Petroville & Surburban Turmoil) I didn’t even have to go back and look for something to nominate. A post was still very fresh in my mind.

WHYMOMMY @ Toddler Planet was recently diagnosed with IBC (Inflammatory Breast Cancer). She’s begun chemotherapy and dealing with the new daily issues that arise, such as explaining to a toddler why mommy’s hair is falling out.

She has two young children and now in what seems like a nightmare, she is living out her title answering questions from her little one who wants to know “why mommy?”

When I first started reading her initial post in which she described her symptoms I knew before I read the three letter word what it was. How would I know? Stephanie. My cousin. Who had IBC. And died….9 months later.

Stephanie didn’t have a lump. And doctors kept telling her it was an infection. Then they said she’s too young (30 years old) to have cancer. Turns out she did have it. And despite how hard she fought, no drug or treatment could stop it.

It’s that aggressive. It’s that serious. It’s that important to spread the word. Because Stephanie is the FIRST person I’d ever heard of having IBC and now I hear of a second person. Two people in my lifetime is too many!

WHYMOMMY had asked that this post explaining IBC be spread around. So I’m posting it here for you to read and pass along. It’s my nomination for “July’s Perfect Post.”

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.

P.S. Feel free to steal this post too. I’d be happy for anyone in the blog-o-sphere to take it and put it on their site, no questions asked. Dress it up, dress it down, let it run around the place barefoot. I don’t care. But I want the word to get out. I don’t want another young mom — or old man — or anyone in between — to have to stare at this thing on their chest and wonder, is it mastitis? Is it a rash? Am I overreacting? This cancer moves FAST, and early detection and treatment is critical for survival.

Thank you.


For more information visit: http://www.ibcresearch.org

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6 Comments so far

  1. […] of the following symptoms in your breast, or any unusual changes: … article continues at Fenicle brought to you by cancer.medtrials.info and […]

  2. Whymommy August 1st, 2007 7:21 am

    Fenicle, thank you. Thank you for the Perfect Post, and most especially for passing the word along. You were the first person I’d heard about IBC from, in your words about your dear cousin Stephanie, and I thank you for sharing her with us.

  3. sara August 1st, 2007 10:03 am

    Inflammatory Breast Cancer is definitely one of the worst. Emily, please tell your cousin’s story at this online breast cancer support community. We need articulate people such as yourself to help spread the word within the community and offer support. Great blog, thank you for your time.

  4. The Real Mother Hen August 1st, 2007 10:15 am

    Thank you for sharing this. I read all info about this very seriously, and always welcome more.

  5. canape August 1st, 2007 11:35 am

    Thanks for posting this, E. The biggest key to IBC right now is early detection. Unfortunately, it sounds like Stephanie had to argue and fight for a diagnosis, and that wasn’t fair for her.

    That’s why getting this word out is so incredibly important. WhyMommy was lucky to have doctors that knew exactly what was going on and didn’t waste any time in beginning treatment. More often than not though, we hold the most power in our care, so education is invaluable.

  6. jaildiet August 2nd, 2007 2:23 pm

    thank you for this information. thank you. thank you.

    best wishes of health, courage, and strength to WHYMOMMY.